This search phrase takes me back to when we were waiting for our diagnosis. I Googled like you wouldn't believe (well, if you're going down that path, you might actually believe), and what I was
desperate for, was to know if having PWS meant my baby would look different. I didn't care about the actual lack of genetic material, I cared about what she would
look like, because people are so mean to those who look different. It's bad enough being called "Four-Eyes" when you have glasses, or being made fun of because you have a weak jaw line, or your teeth have spaces between them (all relevant to me, if you were wondering). I am
normal, and it hurt. I couldn't fathom having a child that looked outwardly different, the thought was soul crushing.
Lucky for me, my beautiful girl is, just that, beautiful.
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My baby with PWS |
Look through my blog for more photos of Ellie. She really doesn't look any different!
We are featuring your inspiring post on our Vanderbilt Prader-Willi Syndrome Initiatives Facebook page today. Thought you and your fans would be interested!
ReplyDeleteRead our post about Ellie here: http://www.facebook.com/VanderbiltPWS