I have finally started writing my book. I hesitate to even mention it, because I am scared that life will overwhelm me and I will stray off course. But, for now, so far so good. My book isn't about Prader-Willi Syndrome, although there will be tidbits of information about PWS discussed. My aim, is to tell our story, the journey we took to get Ellie here safely, through her diagnosis and realizing that perfect has many definitions, then on to uncertainty of a road untraveled. I am hoping it reads like a good fiction book, although it will be our true story.
I've given myself permission to take a year to write it. I will post updates as I go :)
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