Well, they're doing something right. Ellie has gained an average of 28 grams a day since being in hospital! She is up to 4.7kg!! Although we should be aiming for 15 g/day with her PWS (according to Dr. Miller), I have a feeling the docs here will be more inclined to start gh if she is gaining what they want her to.
The nurse said she wants Ellie to be on her bipap as much as possible today. She was off it too much yesterday, and got too tired.
No word on when she gets to come home for days. No rush, though, I just want her to be okay.
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