Monday, January 23, 2012

Another day here. Can you believe my sweet little girl is already 9 months old??? Three quarters of a year old. I can't.
She weighs 4.9kg, and is 54.9cm. That's up a lot from 1.374kg, and 39cm at birth!
Dr. Dee came by today, and here is the latest. They are going to start Ellie on growth hormone, next Monday! 7 days from now. One short week.
She reiterated that starting gh therapy is not without risk. Ellie's airway might fail, and she might need intubation. She said they are always able to save kids when their airways collapse. But, she doesn't think that will happen. The head of the ICU, who was the one to say "no gh therapy without a trach", has even changed his tune, and believes Ellie will be okay.
The difference in her strength is undeniable.
No word on how long we will have to stay after they start.

2 comments:

  1. Susie, that is fantastic news that the GH treatment is about to start. I know you've been waiting a long time for it. I pray everything goes well with it.
    hugs
    Sarah (Bailey's Mummy FF)

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  2. Yay GH! So happy she can finally start what she needs. One baby step at a time, that's my Ellie Elephant.

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