She Will Amaze You

Today was a nice, lovely day.

We woke up early, and sneaked into Jakob's room to snuggle him awake.  After a few giggles, and an "is it good morning time, Mommy?", we got dressed, and headed downstairs for a quick breakfast. I packed his lunch for school, while Jason helped Jakob put his shoes and winter coat on. This morning, we decided to finally walk to school.
I am so glad we did, it felt fantastic to be out in the cold morning air, and we got to school just before 9am, rosy cheeked and feeling great. After we dropped him off, Jason and I went to buy some new shoes (shoes for Jason, winter boots for Jakob). We walked home, did some laundry, did some filing, and had a coffee.
I picked Jakob up from school, and we were invited to a friend's house for lunch and a play date. Jakob loves Isabella, he always has. And her mom is an amazing friend, I am so lucky to have.
When both kids were getting tired, we went home, and got ready to go see Ellie.
She was in a great mood today, every day she gets a little bit better, and we notice. It's amazing, because when you are with someone every day, it is often easy to miss the little changes. I love when nurses, who have been off for a week or so, come back and rave at how she has changed, how she has grown. She is really astounding everyone with her progress.
Auntie Beth came for a nice visit, and Ellie got in some great snuggles. We even did a rough length check, as I was becoming ever impatient for our next endocrinology check-in. She's grown approximately a centimeter in two weeks. TWO WEEKS... a centimeter. Do you remember when I was sad over a 4mm change in a month?? Dr. Dee came by for a quick chat. First she mentioned that will Ellie being more active, and being able and wanting to eat more and more, that they are going to increase the density of her formula to 24 calories per ?, up from 20 cals.  She also said that they will measure her at some point this week, and then we will have to decided when to start gh therapy. We are starting it, for brain development, it's just a matter of deciding whether we start now, or wait until she has grown enough to fit the next size up in BiPAP mask. I'm inclined to start as soon as possible, because if she starts in a hospital setting, she will grow more quickly, and safely, and then would be able to come home sooner. I am so ready for her to come home.