She Will Amaze You

I am so tired these days, Ellie's bipap machine rings off several times a night, which means I'm having a hard time getting much solid sleep in. She, on the other hand, is doing well!

Today we met with a social worker for the At Home Program. Fingers and everything else are crossed that she gets into the program, it would mean funding for her bipap machine and monitor, as well as any additional equipment she might need down the road. If we get into the program, and were to know that funding is secured until she's an adult, I think we might reconsider moving to Alberta. Traditionally, the program does not like to accept infants, but Ellie's case is special, and our social worker seemed to think Ellie would be accepted into the program. We can only hope.

This afternoon, we have a follow-up appointment with Ellie's respirologist, to make sure the bipap is working as it should. I'm not thrilled with the fit of her mask, and we have had continued problems with rainout, so I am anxious to see if we can get that sorted out.

I got exciting news this morning. Ellie's baptism is on Sunday, and in lieu of gifts (seeing as our house is already full to the brim), we decided to fundraise for BC Women's Hospital Foundation, trying to raise enough for a NICU dedication tile for Ellie. I worked with the staff at the Foundation, to create a donation sheet, and added a photo of Ellie, and my own wording. Well, this morning the phone rang, and it was the lady I'd worked with, calling to say that the CEO had seen our donation form, liked it, and wanted to know if we might be interested in participating in their revamp of the donor program. They're envisioning
a plaque that’s about 2x3 feet, for the donor wall, that would have her picture and the following quote:

Ellie is our miracle. We count our blessings daily, and know that without BC Women's Hospital, and the NICU, we wouldn't have her here with us, thriving, growing, and astounding us daily with her progress. In recognition of how far she has come, we are giving back, and dedicating a tile in celebration of Ellie's birth. ~ Susanne and Jason

The Campaign Director for the NICU and the Grant Writer were both asking if they could put the photo and the quote in presentations to perspective donors for NICU! AND they’re in the process of building a new, interactive website. They're going to have a section called I’m a BC Women’s Baby!. They're going to feature little Ellie and the quote to launch the new section for parents.

I am SOOOOOO excited!