Apologies for being absent! The journey back from England wiped me out, and I had the stomach flu on top of the time change, so I'm only just starting to feel like a human being again.
The kids were so very well behaved on the flight home. Jakob had a really upset stomach, but he was quiet and snuggly, and very motivated to see his Daddy. I was so happy to see Jason, and my heart burst when Ellie saw him and broke into a huge smile. Ah, she's Daddy's girl through and through.
We got home late on Monday, and got back with the program on Tuesday. The jet-lag helped us get Jakob to school with plenty of time to spare. We've been waking really early, and going to bed early, which is working out quite well, I must say.
On Wednesday, Ellie met with the ENT specialist at Children's Hospital. They looked up her nose and down her throat with a camera, and didn't find anything worth operating on that would fix her apnea. The doctor saw some swelling and irritation by her vocal chords, which he thought might be due to silent reflux. He gave us a prescription for an anti-reflux medication, which we've started her on already. They said it might take up to six weeks to notice an effect.
Because we can't operate to fix the apnea, I stopped by the pulmonologist's office to put my name on the appointment list for follow-up. I thought it would be a few weeks before we got an appointment, so imagine my surprise when a doctor called me the next morning telling me they wanted to get Ellie fitted with a breathing apparatus as soon as possible. We've been tentatively booked in for Monday and Tuesday nights of this coming week. Ellie has to spend the nights at the pediatric intensive care unit, the only place they have the proper monitoring equipment to start her on a c-pap or bi-pap machine. If she were older, she would just be able to start at home, but because she is so little, and her lungs are still small, they don't want to mess with her breathing. I am not, NOT, looking forward to spending more nights in the hospital, but it isn't about me. It's about Ellie.
I love that girl so much.
No comments:
Post a Comment