If ever there were a time to pray...

Yesterday was torturous. Ellie went through a battery of tests, consults and exams. Neurology recommended an eeg, mri and specific genetic testing for one disorder called Prader-Willi Syndrome. Now, before I found out their recommendations for that test being done, I went home for the afternoon, and did some research about all of Ellie's symptoms. PWS came up on my radar, and I read a bunch about it. I told Jay that I thought she should be tested for it, but before I could even ask it was already being done.

I love my daughter, no matter what. But, I am hoping against hope that she does not have this syndrome.

She has every symptom.