Sleep Study 2012

We're here at the hospital. Ellie just woke up from a nap, looked around, realized where she is and started beaming! Girl sure loves her home away from home!

7:01pm
We are in Ellie's room, waiting on all the machines to arrive. No one said anything about bringing Ellie's bipap, but apparently they want to do a split study. The first half of the night she is going to be left off the machine. When she fails miserably, like the doctors apparently think she will, they will put her on bipap and monitor her on that. Good thing they've got a half dozen machines on standby!
Taking photos on my camera, will post tomorrow!
Will continue posting through the study.
Wish us well!

8:19pm
All set up. Time for a little girl to sleep.

Chest and abdomen straps, leg sensors, heart rate monitor, and oxygen sensor set up

19 probes on her scalp and face...

Set up with bipap cap, for when they thought she would need bipap!

10:45pm
So far she has done amazingly. A few minor desats, nothing major! Keep it up Sleeping Beauty!

11:24pm

Lowest so far has been 80. She is doing a million times better than the last study!


End of test:
I'm wiped. It's just past 5:30am, we've packed up, and I'm ready to drive home. Ellie has periodic breathing, but no major apnea spells, which is just insane!! Her RT and I sat there all night expecting for her to crash, but nothing. It was so weird!!

I don't know if tonight was a fluke, if maybe she was just not really relaxing with the probes, and not being at home. I don't know what it means, but I'm sure it means no trach. No trach...

We are staying with the bipap, because desats of 80 aren't a good thing, but what an improvement!! I wonder if we can attribute this change to the tiny little Synthroid pills she takes every morning.

I couldn't be happier... and now, we wait until the end of the month, and their formal assessment of the whole situation!

Thanks for the thoughts and prayers <3