Hopes for the weeks to come...

I just got off the phone with Dr. D. We are going to admit Ellie for one to two weeks, to figure out the situation with her bipap. Either she's going to be discharged on it, or off it. We're obviously hoping for the latter. How amazing would it be to have our baby back? To have our privacy back? To not be dependent on medical equipment! Dr. D said that that some of these kids fool the sleep study, because there is a certain amount of body memory involved. Because Ellie's been on bipap for months, it could be that she's just used to the feeling of breathing, and does it on her own off the bipap. It can, she said, take up to two weeks to lose that memory and start obstructing again. So, that's the point of the admission. I mentioned my small concern about losing all the progress she's made with the bipap, but Dr. D seemed to think that Ellie is way stronger all around, and reminded me that the last couple of admissions to ICU were because of the bipap. If she doesn't need her bipap anymore, Ellie's smoosh face would go back to normal. Ah, lots to think about, lots to hope for. Could it be possible that my wee girl might eventually sleep in her own room?! And, am I ever glad we decided to host our own One Small Step walk! Now we know she won't be able to go to the Burnaby one!