DH and I were watching Ellie in awe, last night. Where did she come from?! It seems like someone switched our baby with one who can breathe perfectly at night (we're over a week now, off bipap!), who babbles all day long, who giggles, and laughs out loud. She plays games, loves peekaboo, waves and claps for herself. She rolls, she butt scoots, she can get from belly to sitting, and back again. She can push a paced walker, and walk around the room. She can stand for ages at her activity table.
She eats like a champion, no longer gagging on anything. She loves her veggies, she loves textures, different flavours and colours.
She loves her brother, and recently learned that saying Dada will bring DH running.
Last August, we were reeling from her diagnosis. We were thrown headlong into a world of researching, fundraising, and figuring out how to swim in the murky waters of being different.
This August, we're a family. We are whole, complete. We don't miss Ellie's missing genes. We embrace our individuality, our differences, and are proud to spread the word about Prader-Willi Syndrome, and we are no longer afraid of the future. Our family has united around Ellie, we are strong, we are confident.
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