Little Bean had her follow-up ENT appointment today, and it's decided that she will have surgery in January to place tubes in her ears to drain the fluid. Finally!!
I'm not actually looking forward to the surgery, and I'm sure I'm going to be anxious, and they've promised me they will keep her in ICU overnight, but at least we'll be hopefully fixing her hearing problems.
We also saw Respiratory today, and they're keeping things status quo. We need to keep Ellie on the sats monitor throughout the winter (this is different from what they said before), and they said it is likely bipap will be necessary if she gets sick. They were all blown away by how much she's grown, how mobile she is, and most of all how much her face has changed in the time she's been off bipap.
We are going to continue with monthly at home sleep studies, and it's likely we'll do a couple formal sleep studies before spring. Keeping in true Ellie fashion, they've never seen a child present with the kind of breathing issues she has, and they're not sure what to make of it. In any case, we're getting flu and RSV vaccines, keeping up to date with her immunizations and doing as much as we can to make sure that getting sick doesn't exacerbate her issues.
No height or weight check today, but they said based on looking at her that she's perfect.
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