She Will Amaze You

Finally, we have a home visit scheduled with the Infant Development Program director. She's coming over in two weeks. Originally, our referrals went through based on Ellie's prematurity alone. I told the lady about Ellie's diagnosis, and she said that bumped her priority in line, although there is still a substantial wait list. So much waiting, it seems we are always, perpetually waiting for something.

After our visit, she will arrange for the various therapies that Ellie needs. If I had more time, I would have already called around to different places that don't need a referral, but life is a smidgen busy.

Looking forward to our first play date, tomorrow, with a little girl who is a month older than Ellie, who also has Prader-Willi. I am excited to meet someone who is going through everything we're going through, on the same time line. That's pretty huge!

Friday is the PWS clinic at the hospital, so we will have the chance to catch up with the families we met at the walk. I'm eager to attend the presentation put on in the morning, that should be interesting.

"Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength." - Christopher Reeves