Friday, July 19, 2013

Ellie's New Room

It's been very busy, unpacking, vacationing, and unpacking again. I am in LOVE with our new house, and find myself constantly on the go doing something. This afternoon,  Ellie graced me with a nap, and having finished the vacuuming,  I was able to paint her a canvas for one of the walls in her room.
Ellie's favourite song is Darius Rucker's Wagon wheel. It seems fitting for my little country girl.
I used my dusty old Cricut, to cut the lettering out of leftover vinyl shelf liner. Please excuse the terrible photos, my proper camera is in a box!

Cut out vinyl and stuck to canvas

Painted using a piece of paper towel
Let dry, and Peeled off the lettering





Hung!

Thursday, June 20, 2013

End of June

The past few weeks have been heavenly. As close to feeling normal as I think we have felt since Ellie was born.  I can't tell you how incredible it is to have her walking! It was our biggest goal,  and it took way longer to reach than we thought it would to reach; although, she did reach it a full year  before the doctors thought she would when she was first diagnosed.

As with everything,  she had to do it in her own time. 

Since my last update, Ellie has had her hearing checked, and is hearing normally! The surgery worked! She has issues listening because she missed out on so much time when she should have been hearing properly, so now we have to really work to get her attention. But, at least she CAN hear.
Today, we had vision testing, and follow-up for probable strabismus (fancy word for lazy eye). It took eight months to get in to see the ophthalmologist. Eight months of waiting is pretty brutal. But, she was a trooper at her appointment! Funny little thing giggled when she got her eye drops in! Most children cry their eyes out when they get the drops, because they apparently sting a fair bit. I suppose there's a benefit to having a much higher pain tolerance than normal, and less sensory reception. What should have taken 2 hours, took less than an hour because she was so cooperative. It turns out that she's quite far sighted, so we made a stop off at the I glasses store (the same place I got my glasses when I was little!) to order her first pair. Since her face is so small, there were only two frames that would fit her! We decided pretty quickly on which ones to buy. Doesn't she look grown up?

We are moving this week!  I'm so glad it's summertime, and that we're going to have the space to really enjoy the outdoors with her this year. We've been going for lots of long walks, exploring our new neighbourhood, and all the dyke trails and farms around us. Being outside, in the fresh air does wonders for all of us!


Stay tuned for an onslaught of posts, as we settle into our new house, and I get to redesigning our living space :)

Tuesday, May 28, 2013

WALKING!!! (aka BEST DAY EVER!!)

And that about sums it up! Ellie started walking, and boy is she ever making up for lost time! Sister girl walked from one end of the house to the other in one go! I'm amazed, speechless, at her progress!!

Wednesday, May 15, 2013

These Walls

It's been too long, since I last wrote anything that meant something to me. So long, that it's impossible to know where to start. I suppose I should just close my eyes, and start where I start.
It's late evening. Jakob went to bed an hour ago, in my bed because Jason is working. In these evenings, the many, many evenings where he is at work, there are these hours, between when the children fall asleep, and when the nurse arrives to watch over Ellie through the night, where I'm left with my thoughts. Thoughts that make their way through the snuffles of the dog, the wheeshing and whooshing of Ellie's bipap machine, her stuffy sighs, the hum of the laptop fan, and the muffled voices of the neighbours enjoying the calm, humid Ladner evening on their patio. I don't like to be alone with my thoughts, but the longer I ignore them, the harder I try to block them out, to avoid them, the louder they become, until the dam reaches its breaking point, and I realize that I'm not as strong as I pretend to be.
The past few months have been stressful, the most stressful we've had since my adventures with Ellie began. It's nothing short of a miracle that I'm not completely grey, her in the dying days of my 20s.
We have almost completed the sale of our townhouse, this almost one year after first listing it on the market. One year of cleaning up, of storing items, of never being able to find anything. One year of wondering if we would ever move, if we would ever find someone to buy the shelter I've so come to love over the years we've been here.
A house starts off as just a house. Before long though, the walls begin to absorb your experiences, and it becomes your home.
I didn't realise how much I love this place, until the first offer we received fell through. My reaction was one of relief, instead of the expected one of disappoitnment. Relief that we weren't just giving it up to anyone, especially people who didn't value its beauty, and its calmness. The next buyer was everything I hoped for, and I feel comfortable leaving it in her hands.
When we first moved in, our realtor told us that the couple we'd bought it from were happy that another yong couple was moving in. I thought it odd at the time, but now, four years later, I completely understand.
These walls have seen some of the biggest milestones of our family life. Some of the happiest, and some of the absolute worse moments happened under this roof.
Jakob took his first steps, his first tumble down the stairs. He sat for hours in his playpen, watching us paint the living room our own. Dinner parties around the dining table, packed in as close as sardines, laughing, and sharing, and sometimes crying. We've celebrated, and we've mourned.
I remember the first winter, donning our snowsuits and tearing around the yard, building snowmen and making snow angels. I remember the cold winter mornings, snuggling Jakob in close for precious cuddles.
I remember the excitement of finding out I was finally pregnant, trying for ELlie. My glee, bursting into the kitchen to tell Jason that we were going to be blessed again. And, I remember the gut wrenching devastation when I first realized I was miscarrying, the panic, and the sorrow as I crawled into bed with Jason, and sobbed, in the darkness of Jakob's room. I remember coming home from the hospital, empty and lost.
I remember the groundhog day repetition of events as we realised we were pregnant again, this time with Ellie, and thinking I was losing her. I remember the grout lines of the shower tiles, crooked and uneven, etched in my mind from the night the midwife told me she thought I was really losing the baby this time. I remember leaving the house the night I ended up not coming home for a month.
I remember the Spring afternoon, spent watching Jakob run around the yard, in glorious sunshine, learning to kick a soccer ball, while I watched from the comfort of our patio couch.
I remember coming home empty handed, with Ellie in the NICU. I remember crying in the night, because I missed my baby, and I hated pumping.
I remember bringing her home, and being terrified. Of the first time she napped in her room, a room she would never use as her own. I remember the different feeding tube contraptions I rigged around the house, and the first time she lifted her head.
I remember putting on my socks, as the phone rang one evening. I balanced on one foot, as I grabbed the corded phone. It was the geneticist. Ellie had Prader-Willi Syndrome. I swayed as the news sunk, and steadied myself on the window frame. I remember the nauseating walk downstairs to tell Jason the life altering news.
I remember spilling jam on a cream couch, and wondering why on Earth a person with young children would have light coloured furniture. I remember moving the armoire up into our bedroom, and laughing that we would have to throw it out the window to get rid of it. (Great, that's going to be our reality!)
I remember the day I had to call the paramedics, as they filled our small entryway with their big bodies, their bags of equipment, their stretcher and canister of oxygen. I remember that night like it was tonight. I can remember where the bassinet lay on the dining table, here where I keep my laptop. Where Ellie lay, barely breathing, grey as the walls surrounding me. I remember the fear, oh the fear, that she wasn't gonig to be okay. But, she was, she would be, it would all be okay.
I remember everything I've made in my kitchen, every failure, every wonderful victory.
I remember chalk paint on the entry walk, Jakob colouring on his walls. I remember every mark on the door jamb in Ellie's room, charting their growth, proving we were here.
I remember cleaning under the dryer, and finding evidence of people living here ten years ago, and laughing that we still get their mail on occasion.
I remember in the middle night where the walls shook with the most bizarre sound, as the neighbours water pipes had some issue. I remember being terrified that Jason hadn't returned from investigating after five minutes, little did I know he was trying to help them stop the problem.
I remember the bathroom demo, the reno, and the joy in erasing some bad memories. I remember the sense of accomplishment I felt in installing a toilet myself, and being so proud that it didn't leak!
I remember Ellie graduating from infant insert, to pack n play, to crib. The first night we had nurses, the first night they called me because there was a problem.
I remember sitting around a crackling fire, and the three magical, wonderous Christmases we had here, hanging our stocking on the nails which disappear into the stonework. I remember every fight, every make-up, every random furniture arrangement.
I remember every therapy appointment, every assessment, all the times I had hope and it was upheld, and the times where I had to battle discouragment.
I remember staying up all night with Jakob who was sick. I remember huddling on the couch with Jason as we experienced that bug ourselves. I remember so much laughter, so many silly dances and made up songs. I remember insane cleaning frenzies, which saw me attacking every spec of dirt with toothpicks and q-tips. I remember falling up the stairs, and spraining my ankle, and laughing through the tears.
I remember so much.
I wish I could touch every wall and reabsorb the moments, the memories, the good and the bad. I wish there were some way to bring it all with me, to keep those memories safe, to share with my babies as they grow to understand.
These walls will be there for their new owner, just as the walls in our new house will be there for us. Solid, strong, and always listening.

Sunday, April 28, 2013

Busy!

What a busy few weeks we've had!!

We relisted our townhouse for sale, and are sooo excited to have accepted an offer! We're now in the tense, waiting for subjects to be removed period! Subjects come off on May the 7th, and hopefully everything goes smoothly.

We celebrated DH's birthday, and then Ellie's second birthday. She's so amazing, I'm so happy with her progress, and how lovely she is :)

We held a little tea party for her yesterday, with all together too many treats and goodies. I went into sugar overload, and I think I'm taking a long break from eating sweets. My waist line and complexion will thank me, I'm sure!

I didn't take any photos of the party! NOT ONE! All I have are a couple from DH's phone. I was so busy talking with guests, and negoatiating our contract that it compeletely slipped my mind.

I've been meaning to post about evcerything we've been going through, but seriously messed up my right wrist about a week ago, and typing is now a one-handed affair. Not fun.

When DH is off work I will post the few photos we have of the tea party. It was awesome!

Monday, April 15, 2013

Dear Ellie

Ellie,
Tonight, one week from your second birthday,  you gave me the rare privilege of rocking you to sleep. Still so small, the weight of you in my arms was no burden at all, and I would gladly rock you through the night. You are sleeping so soundly on my shoulder,  one fist clenched in my hair. I am in heaven.
We have been through so much, you and I, over these two years. There have been too many nights where we were apart,  so many countless nights that we will never get back. I am grateful,  so grateful for how long I've been blessed to have you be little. It seems as though the Universe wanted to make our many separations up to me, by giving me moments like tonight,  where you are still so much my little baby.
I marvel at the progress you've made, but moreover wonder at the amazing personality you have developed. You are, quite simply,  the greatest joy. You are so full of love, you give affection to those who need it, be they strangers or family. You smiled at the glum elderly woman on the other side of the store and waved hello, as every part of her perked up and she beamed at you today. Your giggles, though rare, are truly infectious, and the music of my heart.
You are stubborn and determined,  and that will get you far in life. You know what you want, and you work so, so hard to get it.
You are clever, we can't slip anything by you! The pace at which you learn new skills astounds me. 
You are so compassionate and empathetic, already! You cry when someone is hurt, and you give the biggest tiny-girl hugs. You laugh when others are happy, and you are so in tune with their emotions.
I can't believe you're soon to be two. It can't possibly have been so long since the first moment I laid eyes on your little face. 
If only I had known how much you would inspire me, teach me, impress me, amaze me! I could have saved myself the needless heartache when we were told that you were different. 
You are different. You are incredibly,  perfectly you, and I wouldn't change a single thing about you. 
I love you,
Mommy 




Tuesday, April 9, 2013

Day 11 - Going for Clean

We've decided, once again, to try to sell our townhouse! It is listed on the market today, and I still have to declutter and take photos! Yikes...

I'm in the process of planning shots, so I'm going to be quick tonight :)

Day 11's suggestion is to once a week check the contents of your fridge, empty out what's gone off, and do a quick wipe. I hate cleaning the fridge. If I do it a little at a time, it seems to be less of a chore!