Saturday, August 4, 2012
Hot Potato!
Thursday, August 2, 2012
Change of plans... Sort of.
I talked to Dr. D today, and Ellie isn't going to be admitted on Monday. She is going to have her sleep study and then we are going home. Because the sleep study takes a while to interpret (read it is summer and everyone is away) they need a whole before they want to admit her. Now we are looking at a late August admission, on the heels of a clinic visit.
I mentioned that ENT didn't feel there was anything they could do with regards to removing tonsils and/or adenoids.
She asked how Ellie was growing, and didn't sound particularly pleased with what I told her. Wee nugget is still very wee!
Dr. W, head of ICU is away for most of September, so the plan is to have Ellie in well before he leaves.
We are hoping and praying that at the very least, Ellie's central apnea has improved. Dr. D said that OSA can be managed with bipap, but central is concerning. If I remember correctly, the results of the first sleep study showed sever central, and moderate obstructive apnea. Hoping for improvement, and a very short, uncomplicated stay at the end of the month.
Thanks for reading. It is always nice to see that I am not just writing to myself :)
I mentioned that ENT didn't feel there was anything they could do with regards to removing tonsils and/or adenoids.
She asked how Ellie was growing, and didn't sound particularly pleased with what I told her. Wee nugget is still very wee!
Dr. W, head of ICU is away for most of September, so the plan is to have Ellie in well before he leaves.
We are hoping and praying that at the very least, Ellie's central apnea has improved. Dr. D said that OSA can be managed with bipap, but central is concerning. If I remember correctly, the results of the first sleep study showed sever central, and moderate obstructive apnea. Hoping for improvement, and a very short, uncomplicated stay at the end of the month.
Thanks for reading. It is always nice to see that I am not just writing to myself :)
15 month weight/length check
It seems to me that Ellie's growth has slowed again. But, I don't have her chart in front of me at the moment, so it's hard to tell.
Today, she was 66cm, or 26", and 6035g or 13lbs4oz.
Still tiny, and still super duper popular wherever we go!
Today, she was 66cm, or 26", and 6035g or 13lbs4oz.
Still tiny, and still super duper popular wherever we go!
Wednesday, August 1, 2012
Smoosh-Face Revisited Again!
Someone was asking to see how Ellie's face has changed, so I pulled up our before picture, one from February, and one from today. The change is very, very noticeable, although Dr. Dee said it wasn't as bad as some of the kids she sees. It will only continue to get worse if we stay the course with Bipap as a method of treating Ellie's apnea.
August 1st update: Ellie now has five teeth (three on the top, two on the bottom), and her lower jaw protrudes about a centimeter in front of her top jaw, such that the space created between upper and bottom teeth is interfering with her ability to chew/bite anything effectively. We have an OT appointment tomorrow morning! Finally, she's been picked up by OT, so they're going to assess that. And, I guess we'll see what happens next week while she's at the hospital, and if that plays into their plan at all!
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| Ellie before starting Bipap |
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| Ellie two months into bipap therapy |
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| Ellie five months after starting bipap |
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| Ellie seven months after starting bipap. |
What the what?? I just called the Respiratory clinic to figure out the planning for next week, and Ellie's stay, and the receptionist who books everything didn't know what we're supposed to be staying.
So, now I'm really confused! I called to ask if we were going to come home after the sleep study, or go straight to TCU, and apparently no one's mentioned us staying.
Dr. D who makes all the decisions, had already left for the day, but I'm hoping to hear back by tomorrow, so I can plan things out a little better. We've been waiting for months for this stay. I wouldn't be too impressed if it doesn't happen.
That said, I'm sure it's going to happen, so we shall see.
So, now I'm really confused! I called to ask if we were going to come home after the sleep study, or go straight to TCU, and apparently no one's mentioned us staying.
Dr. D who makes all the decisions, had already left for the day, but I'm hoping to hear back by tomorrow, so I can plan things out a little better. We've been waiting for months for this stay. I wouldn't be too impressed if it doesn't happen.
That said, I'm sure it's going to happen, so we shall see.
We're nearing the end of our Mommy-Daughter holiday, with my going to work on Friday, and Jakob coming home on Saturday (yay!). Yesterday, we spent the day with Auntie Liz, my brother's girlfriend. I left Ellie with Liz, while I went to donate blood. Then, we went shopping at the mall, followed by dinner out with my brother.
Today, I got my hair cut! I've been meaning to for quite a long time, and decided it was time. She cut off 9 inches, and it feels phenomenal. My next plan is to grow it until I have enough to cut off to donate to a wig making company, like Pantene's Beautiful Lengths program. Ellie was happy to pose for photos with me:
Today, I got my hair cut! I've been meaning to for quite a long time, and decided it was time. She cut off 9 inches, and it feels phenomenal. My next plan is to grow it until I have enough to cut off to donate to a wig making company, like Pantene's Beautiful Lengths program. Ellie was happy to pose for photos with me:
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